Healthy links to better patient outcomes.
Centric Health Resources is proud to partner and be associated with outstanding organizations and resources, each focused on advancing initiatives designed to improve the lives and health of ultra-orphan patients and their families.
The Alpha-1 Foundation provides resources for Alphas, friends and families looking for information on Alpha-1 Antitrypsin Deficiency (Alpha-1), a condition that is passed on from parents to their children through genes. Here you will find information on standards for diagnosis and treatment, resources and information about Alpha-1 and testing, clinical resource center locations, research programs, special stories, education opportunities and ways that you can help.
The Alpha-1 Association is a member-based not-for-profit organization dedicated to identifying those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research. Alpha-1-Antitrypsin Deficiency (Alpha-1) is a genetic disorder that can cause liver and lung disease in children and adults.
ALPHANET is a not-for-profit organization dedicated to improving the lives of individuals affected by Alpha-1 Antitrypsin Deficiency. Organized and run entirely by Alphas, AlphaNet develops and offers a wide range of specialized programs and services designed to prevent the development of disease, improve the quality of life and efficiently manage health resources for individuals with Alpha-1. AlphaNet provides support services directly to other Alphas, and also provides specialty-approved education programs for nurses, physicians and respiratory therapists. This organization is also committed to providing significant financial contributions to research and to improving the public’s understanding of Alpha-1 by helping in the management of clinical research studies.
Prolastin® is used for alpha1-antitrypsin (AAT) deficiency in adults with emphysema. Since 1988, physicians and patients have relied on Prolastin® as a critical part of the total treatment regimen. This website provides in-depth information on AAT, its treatment with Prolastin®, how to manage AAT and how Prolastin® can help.
Pemphigus is a group of rare autoimmune blistering diseases of the skin and/or mucous membranes. In an autoimmune disease, the body's immune system attacks its own organs or tissues by producing autoantibodies (antibodies against the self). The International Pemphigus and Pemphigoid Foundation provides patients and doctors worldwide with information about pemphigus and pemphigoid, and to provide patients and their caregivers much needed comfort and support so they can continue to live active, productive lives.
HepaGamB is the first intravenous hepatitis B immune globulin approved by the FDA for the prevention of HBV recurrence following liver transplantation and now available through the Centric Health Resources In-Home AfterCare Access Program. Distributed by Apotex Corp. Manufactured by Cangene Corporation.
The National Organization for Rare Disorders (NORD), a not-for-profit organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.
The Center for Health Transformation (CHT) is a high-impact collaboration of private and public sector leaders committed to creating a 21st Century Intelligent Health System that saves lives and saves money for all Americans. CHT is based on the following premise: Small changes or reactionary fixes to separate pieces of the current system have not and will not work. We need a systemwide transformation.